Inspirational
Stories
Click
here if you would like to
submit your own inspirational story to PanCAN.
Would
you like to share your experiences with pancreatic cancer and give
support to others? If so, you should consider joining our
Survivor and Caregiver Network.
The
Survivor and Caregiver Network is a group of volunteers throughout
the U.S. who are available to communicate one-on-one with those
diagnosed with pancreatic cancer and their loved ones. The
volunteers are pancreatic cancer survivors and caregivers who have
provided their contact information to be shared with others through
the PALS program. Contact can be made via phone or email and
serves as a helpful source of encouragement, support, and inspiration.
Click
here if you
would like to participate or volunteer in this program.
Diagnosed
May 20, 1996 and now it is May 20, 2008. Thanks for
12 years and not 3 months. Keep hoping, keep praying,
keep working. Appreciate every day. Thanks.
Stan
H., Turner, ME 5/20/08 |
SUE'S
STORY... (in my own words)
In 1999 I was diagnosed
with Pancreatic Cancer which was treated with surgery (Whipple's
procedure) along with radiation, followed by chemotherapy.
I have always been reasonably fit and have exercised and eaten
well most of my life, so after the initial trauma of the treatment,
I continued to lead an active life.
8 years on...
In May of 2007 during
a routine check up, I was unfortunately diagnosed with Stomach
Cancer which was believed to be in the area of the previous
radiation treatment I'd had back in 1999. Once again, surgery
was the first option, followed by chemotherapy.
Soon after my surgery
and just prior to commencing chemo, my brother and his wife
visited from interstate. They had previously mentioned to
my husband and I about their magical experience in Tasmania
climbing Cathedral Mountain (2730 ft). They did this early
one morning while on Christmas holiday and sat at the summit
enjoying a coffee as they watched the sun come up.
Their experience
totally resonated with me and seemed like a wonderful goal
to have once I completed my chemo treatments. My brother said
to me if I could climb the mountain, he would somehow get
the BBQ to the summit and cook me a BBQ breakfast topped off
with a glass of champagne. I guess everyone needs something
out of the ordinary to help them through challenging times
and this was my thing to do.
I finished the chemo
treatments early in November and as we were planning the details
of our Christmas gathering, this all became a real and possible
goal.
After chemotherapy...
Not being in the
best physical condition due to the taxing chemotherapy regimen
and having lost a lot of weight and strength, I was also faced
with an added dilemma of a low functioning pancreas. My pancreas
was now destroyed from the previous cancer, and I had become
diabetic.
Upon arriving at
our holiday destination, nobody was particularly keen for
me to attempt the climb, so my first challenge was to prove
to them all that I was strong enough to climb the mountain.
So, the training
towards my goal began with 5 km bike rides which I initially
struggled with but amazingly progressed at a great rate. In
fact, in no time at all, we were riding around 30 km a day
over hilly terrain. We set a time frame of 2 weeks into our
holiday with making it to the summit in mind. Nothing more,
nothing less.
2 weeks on...
The big day finally
arrived and it was a hot one so we set off at first light.
There was myself and 6 other family members ready and raring
to make it to the summit. With everyone's support and patience,
I managed to keep up with the pace only pausing for a few
jelly-bean stops along the way to keep my blood sugar at an
acceptable level.
I did it, we did
it!
Family and friends
live through a serious illness with you, so to see the pride
on their faces, the huge smiles and hugs - it is a very humbling
and emotional moment.
A few weeks on...
am I crazy or?
The same 6 of us
were traveling to Tasmania with a more challenging mountain
to conquer. Cradle Mountain (4944 ft) was a challenge of a
far greater magnitude. We were faced with very cold winds
and a climb that finished with a rock scramble. Everyone supported
each other and worked together to make it to the peak. On
a few occasions tears brought on by fatigue almost stopped
us, but with the never-ending encouragement we finally conquered
the climb to the top. More tears and hugs all around. I can
honestly say if I had been doing this climb alone I would
not have made it. The camaraderie and support was definitely
what got us there as it was a difficult climb for us all.
Spirit and love...
The mind and body
really are two different identities. We sometimes have a challenge
in our mind but the body is definitely unable to carry it
out. I felt such an overwhelming sense of pride that my body
was up to the task. The aches and pains were well worth it,
the bond that was formed was priceless and the views breathtaking.
Then of course there was the issue of making it back down
which was a 6 hour trek.
Never limit what
you think you can achieve as you will be amazed at what your
body and mind can accomplish.
Sue,
Brisbane, Australia 5/15/08
|
A
5.5 cm tumor was discovered on the tail of my pancreas in
November of 2006. I was 48 years old at the time. After an
extensive endoscopic ultrasound at a University Hospital,
it appeared surgery was possible. Surgery was attempted, but
could not be done due to the location and advancement to the
spleen and stomach. Using chemotherapy alone, the tumor shrank
to 2 cm within 2 months, and the other areas where the cancer
had spread diminished accordingly.
For 18 months I
have followed a very 'whole foods' and organic diet and have
had over 60 infusions, mostly Gemzar, oxaliplatin and Tarceva.
I am just as positive
today as I was 18 months ago that I am going to get through
this, and believe this is one of the reasons I have done well.
Susan
K., Battle Ground, WA 5/14/08 |
In
February, I had my 6th anniversary of being cancer free. I
was diagnosed when I was 41 years old with pancreatic cancer.
I didn't ask nor did I want to know what stage I was, I didn't
feel it was relevant or important. The key was to beat it
and win, which I did.
I had a Whipple
procedure at a University Cancer Center with a surgeon who
is the "go to" guy in these parts. I followed up
with 6 months of chemotherapy with an oncologist at the same
location. What a great team. I feel it's important to find
the best experience to get the best results.
Let me give some
straight forward advice, stay away from survival rates, they
are not important or relevant to anyone's survival. They place
a negative in your head that is hard to overcome. Do some
homework and check with any resources available to find the
best doctor, the most experienced you can get. In my opinion,
go with tried and true treatments to get the best results,
in other words, go with the treatments that have shown results.
A friend of mine
was recently diagnosed with cancer of the bile duct. It was
amazing how many doctors wanted to do the surgery, but lacked
the experience. Statements like “I've done a couple” or “I
believe I can do it” by surgeons may not be in your best interest.
I was discovered
to have type 2 diabetes a couple of years afterward.
The hardest part
is the mental game it plays on your head. You feel like you've
been hit by a car and you're trying to find a way to get back
on your feet. The cancer sneaks up on you and it's the last
thing you suspect. Work through it the best you can and be
sensitive to those around you. Everyone wants to help you
and don't know how. Be as strong as you can for those around
you. There's nothing wrong with an occasional pity party,
but you need to not drag yourself and others down around you.
It's just as hard on your loved ones as it is on you. Be as
positive as possible, it will help you heal. You may want
to try some positive affirmation tapes to help your body heal.
Jim
S., Glendale, CA 4/1/08 |
STATISTICS
CAN BE WRONG
Don't be unwilling
to question the Doctor
On a warm April
morning in 1992, my wife Carolyn and I were anxiously waiting
at a hospital in Santa Rosa, California. We were waiting to
see the Chief of Surgery.
The story begins
in February of that year. I noticed a feeling of tenderness
on the right side of my lower abdomen. There wasn't any real
pain, just tenderness, and after all, I was over 61 years
old. I convinced myself that I should expect some aches and
pains and I let it go. But, when I went for a check-up with
my primary care physician a few weeks later, I mentioned the
tenderness to him. He examined me and told me that he thought
that I had a hernia, and arranged an appointment for me to
see one of the staff surgeons.
When I was 18 years
old I was working with a bricklayer building a chimney on
the roof of a house, and as kids sometimes do, I got careless
and stepped off the roof. I was lucky enough to land on my
feet, but I was not so lucky to have the landing result in
a hernia on my left side. In any case, I was aware of what
a hernia felt like and I didn't believe that I had one. But,
I thought I might as well go through the process and see what
would happen.
The appointment
with the surgeon was the beginning of a remarkable series
of events that led up to what, as Paul Harvey says on the
radio, is “The Rest of the Story”.
After a short, cursory
examination, the surgeon confirmed my suspicions that I indeed
did not have a hernia. He made a few comments about my primary
care doctor, and then told me that the symptoms I described
could be connected to urological problems and suggested that
I see an Urologist.
So, off I went to
make the appointment with the Urologist. It was several weeks
later that under the care of the Urologist, I was given all
the standard urological exams and tests. Nothing came up abnormal
in the tests. And after discussing the test results, the doctor
said to me, “There are some things that do not show up on
the tests you have had. Just to make sure I want you to have
an ultrasound exam of the abdominal area.” After the ultrasound
exam, when I was getting dressed, the doctor came into the
room and said, “There's something there, but we can't tell
what it is. We want you to have a CT Scan.”
Which brings us
back to that Monday morning in April of 1992, sitting in the
reception area at a hospital, in Santa Rosa, California waiting
to see the Chief of Surgery to discuss the results of the
CT Scan. I asked Carolyn to go with me because the Urologist
told me that the scan had revealed “a mass on my pancreas”.
Carolyn and I were
married on December 7, 1991. We both had been married before
and had each raised three children from our first marriages.
All of the children were grown adults and were not living
at home when our marriages had ended in divorce. Carolyn had
been divorced several years before, and I had been divorced
in 1990. Carolyn and I had then, and still have, that rare
bond of faith and trust in each other that sometimes develops
and grows between two people who love one another and are
fortunate to have met. We worked together at the same company,
and we had become friends. We both fervently denied any interest
in being married again, but our friendship grew into a deep
respect and love for each other that neither of us had known
before. I needed her with me for this interview.
After our marriage,
we settled into the daily routine of work and play, and we
were extremely happy with our lives. We were looking for a
house to buy so we could move from our rented house and get
a little closer to work. I was feeling good and didn't think
that I had any health problems, until I heard the results
of the CT Scan.
We were ushered
into an examining room shortly after the appointed time. The
Chief of Surgery came into the office shortly after we sat
down. He introduced himself and put some x-ray films onto
the illuminated viewer on the wall so we could see them. His
manner was quite brusque as he showed us the x-rays, which
showed a mass about the size of a good sized lemon on the
tail of my pancreas. He explained that it was not possible
to say for sure that it was malignant, but he indicated by
all his comments that in all probability it was. He went on
to tell us that pancreatic cancer is a particularly treacherous
type of cancer. He said, “The survival rate of patients who
have pancreatic cancer is about two percent. I have known
a number of doctors who when diagnosed with pancreatic cancer
have elected to not have surgery, but to go out and do the
things they want to do and enjoy what time they had left.”
What he meant, of course, was that with the small chance of
survival, it would be better to not go through the trauma
of surgery and treatments, but to go and enjoy the time left
in my life. He left little doubt in our minds about how he
felt. I looked at Carolyn and she was in shock at the statements
the doctor had made. I guess I was not as surprised, because
I had heard a number of times about people who had been diagnosed
with pancreatic cancer and didn't live long after they found
out about the disease. I will always regret that I had not
told Carolyn about my doubts before meeting with the doctor.
I think if I had, she would not have had to endure the shock
of his saying what he did. But, when he made that statement,
I looked across the desk at him, and I said, “That's not my
choice”.
The surgeon looked
back at me, sat back in his chair, and said, “Okay. If that
is what you want, I will do what I can to move you ahead in
the surgery schedule, and I'll start to make the arrangements
today. I want you to know what we're facing. This will be
an extensive abdominal surgery. I will have to go in and look
at everything and if I have to I'll take out your spleen,
I'll take one of your kidneys, you only need one, I may take
part of your stomach, and part or all of your pancreas. But,
if I get in there and find out your liver is involved, I'll
sew you right up and do no more. I want you to go and see
if you can give some blood to be used in surgery. See you
next week.”
As it turned out,
I was too anemic to give my own blood, and after several weeks
of trying to build up my own blood we gave up and agreed to
have donor blood. True to his word the surgeon did move me
up on the surgery schedule, and he was ready to take me into
the operating room on June first.
During this time,
Carolyn and I had been looking at houses in and around Santa
Rosa. Looking at houses helped to keep our minds off all the
other things going on with arrangements and tests leading
up to the coming surgery. As luck would have it, we found
a house we really liked and it was close to work and met the
other criteria for a house we wanted. So, we bought it. Now
the job was to go through escrow and have the paperwork closed
in time to get everything done before I would have to go in
the hospital. We did it, just. The weekend before June first
we moved into the new-to-us house. We were lucky to have friends
and family help with the move and we had about 15 or 20 people
moving things into the house and arranging furniture, putting
up pictures and trying very hard to do everything for us.
Carolyn and I had prepared for a cook-out for the whole group
and on Sunday afternoon we barbecued sausages and burgers
and served salads and other good things for everybody. After
we said goodnight to our last guests about 8 o'clock Sunday
night, we sat and relaxed for a few minutes. Strangely we
didn't talk much about the next day. We talked about our friends
and family, their kindness in helping with our move, and some
of the things that occurred during the day that put smiles
to our faces. We knew that all of our friends and family had
us in their thoughts and prayers that night. After a while,
we decided to get some rest for the next day.
The next day, Monday
morning at 6 o'clock, we presented ourselves to the admissions
desk at my hospital in Santa Rosa. After the paperwork and
hospital prep work, they rolled me into the operating room
about 8 o'clock the morning of June first. The operation lasted
over three hours. Carolyn, with her children and one of our
very good friends, had an arduous wait in the waiting room,
but she told me, “It would have been tougher if the surgeon
had come out in a short time, because that would have been
a sure signal that there was too much involved, and he had
‘sewed you right up'.” After the surgery, I had the easy part.
I was kept pretty well out of it for two and a half days in
intensive care. I remember watching a digital gauge of my
blood pressure and thinking, “Boy, that's as low as I ever
saw it”. And once when there were a lot of people milling
around my bed, one of the nurses tripped over the mass of
tubes that were stuck in me at various places. When things
were stabilized they moved me to my room and even though I
was still hooked up to many tubes, I was able to get up and
walk around the halls pushing my tree of IV bottles. Every
day, for the next few days, the surgeon would come into my
room and ask me, “How are you, have you had any gas yet?”
At that point it was really good to have a joke to laugh about
so the whole family took advantage of it, and everybody would
ask me the same question.
Thanks to a surgeon,
wise enough to determine that a diagnosis of a hernia was
wrong, and who cared enough about a patient that he suggested
I should see a urologist for the symptoms I described; to
a urologist who was steadfast in his efforts to diagnose my
illness; to an incredibly skillful surgeon who had a lousy
bedside manner but great hands and great knowledge, who took
out the mass and a third of my pancreas, explored all the
other organs and found no evidence of their involvement, and
then “sewed me up”; and to the
awesome support of my wife, Carolyn, and family and friends,
I came out of the operating room with a new chance on life.
The mass was malignant.
The hospital did all the lab tests and presented the tests
and surgical report to the cancer board, a group of doctors
who examine unusual cancer cases. All this was happening during
the ten days I was in the hospital and several weeks I was
recovering at home. The board was not able to come to an agreement
on what type of cancer I had. So, the hospital decided that
I should have my case reviewed by a University hospital. The
local hospital made the appointment for us to see a panel
of two doctors at the University the next week. Carolyn and
I loaded up the files and headed to the University. The doctors
there gave me a brief exam, and we talked with them for several
hours. They took the files and told us to come back in a few
hours. We had leisurely lunch out in the avenues near Golden
Gate Park, and found ourselves back in the waiting room at
2 o'clock in the afternoon. Meeting with the doctors, in a
conference room there, they confirmed that the type of cancer
I had was pancreatic cancer. They told us there were three
possible treatment recommendations they would make:
1. Do nothing and
assume that the surgery cured the cancer.
2. Have radiation treatments
only.
3. Have chemotherapy
and radiation.
My hospital told
me that the choice was mine. So, I told them that my choice
was to do everything available to make sure that the cancer
was gone and would stay gone.
At the end of July
we were ready the start treatment. Five days a week for twelve
weeks I had radiation treatments, along with chemotherapy
twice a week that was designed to enhance the radiation. During
that time my oncologist ran every test he had available to
him. Included were two bone scans, CT Scans and a blood test
every few weeks along with constant encouragement for the
treatments. Completing the treatments in October, I went on
to see my oncologist for the next three years, until we moved
out of the state. At our new home I was fortunate to have
equally good follow-up examinations from our new HMO and after
13 years I no longer see an oncologist, but my primary care
doctor follows up with a blood test every year.
Today, I have no
recurrence of cancer and I am a happy, healthy 76 year old
man. Carolyn and I have the pleasure of enjoying our children,
grandchildren and great grandson. How lucky can
one man get?
I believe, for the
most part, you make your own luck. But with the love and devotion
of my wife Carolyn, the good thoughts and prayers of our family
and many good friends, the skill and concern of the medical
staff at my hospital, and luck by any description, my story
has a happy ending!
I know that many
people have not been as fortunate as I have been, but maybe
someone reading my story will question the suggestion that
an illness is not curable. Maybe they will believe it is worthwhile
to pursue every course of action available to them to capture
the opportunity to be cured. And that good medical care, a
loving family and friends, and your own kind of luck can save
your life.
I hope so!
Glen
G. 3/20/08 |
I'm
writing this to celebrate my mother's Two-Year Anniversary
of her diagnosis; this is for you mom:
It was exactly two
years ago today that we received the news that my mother's
pancreatitis was actually pancreatic cancer. She'd been in
and out of the hospital from January 31, 2006 - March 7, 2006
with what we thought was pancreatitis or gall stones, but
when the phone call came with the diagnosis it devastated
our entire family. At only 55 years old we all thought mom
was too young for this, but we now know that pancreatic cancer
can strike anyone.
In an effort to
help my mom who was too tired, sick and weak to determine
her own course of action, I developed a strategy plan and
quickly became President of Team Operation Kick Cancer's A**.
We learned that mom's tumor was still small enough to potentially
make her a candidate for the Whipple and we got on a plane
to travel to see if a cancer center would operate on her.
On March 23, 2006 my mother underwent the Whipple procedure
and our family held vigil for 12 hours in the waiting room,
constantly calling home with updates for the hundreds (literally)
of people who were scattered in churches, schools and at home
praying. At 8:30pm that evening we got the news we yearned
to hear: clean margins, tumor gone, mom did well.
Two months later,
and cancer-free, mom started a regimen of 5-FU and Gemzar,
6 weeks of daily radiation, and a follow-up of 5-FU and Gemzar.
For 11 months the cancer was in check but in January 2007
her CA 19-9 had risen quickly and we all knew what was coming
next. The cancer had returned to her liver and surrounding
lymph nodes. Team Operation Kick Cancer's A** was started
again. Back to the cancer center we went, but when we learned
that surgery wasn't an option this time, mom decided to become
part of a clinical trial at our local hospital and receives
chemo in bi-weekly doses which she wears for 48 hours.
It was 12 months
and 3 weeks ago that the treatment was started. My mother
feels well, looks good and maintains an ACTIVE (sometimes
too active we think) lifestyle. She is a survivor in every
essence of the word.
Yesterday she had
another CT scan and we got some more encouraging news - the
largest tumor in her liver appears to have potentially shrunk
and the center appears dead. The cancer is still there, but
she can, does and will continue to live with it until it goes
away - we all believe this and pray daily.
I wanted to share
my mom's story with all of you because she is the definition
of hope, faith and courage and we do believe in miracles and
think we've had a few cross our path already. She is a testament
to those that believe you cannot live with this disease -
you can, you will.
I'm not the one
living with cancer, but I live it every day with my mother
and I can tell you that it's her attitude, her faith and her
determination that keeps her fighting this battle with vitality
and strength. Even when the cancer returned, which we all
know is common with pancreatic cancer, mom has not given up
- she's my hero and she makes me want to be a better person.
I'm getting married
this summer and asked my mom over Christmas if she would like
to walk me down the aisle with my father. To my surprise,
she said no (she and dad are happily married too). Then she
told me that she wants to celebrate seeing me walk down that
aisle and she's waited her entire life for that moment. And
Mom, when you read this, I want you to know that when Dad
and I walk down that aisle one of the greatest joys of my
wedding day will be seeing you there at the end, watching
the daughter you've raised, taught, loved and inspired take
her husband and start our life together. There will be tears,
but they will be of sweet joy and celebration.
Mom, Happy Anniversary.
Keep fighting, keep believing and keep your faith. We are
right there with you every step of the way and I love you
very, very much. Cheers to you today and to MANY more anniversaries!
Kellie
S., Pittsburgh, PA 3/7/08 |
Hi.
I was diagnosed with stage IV pancreatic cancer which spread
to the liver in January ‘06. I had never smoked, don't drink,
did exercise and was in good health up to this time (although
there is a history of cancer on both sides of my family).
Since then I went on Gemzar and Tarceva for about 15 months.
My scans had been showing no detectable cancer for the last
12 months. I had a biopsy on my liver which turned out negative
and tried going off chemo for about 6 weeks. Unfortunately,
the cancer returned and I went back on the same chemo regimen.
It didn't work as well the second time and in October ‘07
I switched to Gemzar and oxaliplatin. That seemed to work
as my last scans from January ‘08 are clear again.
I write this to
offer hope to everyone who has to go through this. I have
relied on my faith, family and friends to get through this
and learned that these are the most important lasting things
in my life. I don't know for sure what my future holds but
I am sure that cancer and death will not be the end for me
since my faith promises me a perfect cancer free life after
this one. I have found a good cancer support group at a church
and talking to the many survivors there has been a huge benefit.
I also have been fortunate to have kept working most of the
past 2 years and I try to eat healthy and do some exercise,
mostly walking and light weightlifting, to keep my strength
up. I pray my story will offer some encouragement to you.
Mark
P., Bartlett, IL 2/22/08 |
I
have been looking for a site like this since being released
from the hospital in April 2006. No one else can really relate
to my experience, and here I was able to read about other
survivors. And, if you look at the web sites and the stats,
you would think that there are none! Reading these inspiring
stories has given me such a lift.
I was told that
I had a "mass" on the tail of my pancreas in Dec
2005, with the only chance of survival being surgery! Honestly,
after going home and reading related web sites, I thought
I was going to die of fear before I would even have the surgery.
I went into denial for 6 weeks. Then I thought, I'll just
juice-fast that 2.5 cm tumor away. I fasted for 21 days on
the master cleaner-lemonade diet. I felt great after and lost
some needed weight, but the repeat CT scan showed that it
was still very much there. So I surrendered and consented
and had a distal pancreatectomy and splenectomy. I now have
50% of my pancreas. One of the issues following surgery was
menopause; hot flashes started about the day I got home from
the hospital, and I think I've aged a lot. Oh well. Panic
attacks, which are so not me, are an issue right now. I was,
in my youth, a rollercoaster junkie; now I drive slowly in
the slow lane. Depression set in because my job of 22 years
refused to take me back when they found out what kind of surgery
I had. Don't worry, I am pursuing that issue. And, you know
what can follow job loss, (I am a sub-prime mortgage poster
child), STRESS as never before, bankruptcy just to save the
house, snowball, crash, burn. So, this all has affected my
healing process. But, I am keeping my head up.
A CT scan last April
showed all is well and I will expect the same when I go for
another this April. Although, I need to believe that I am
healed and stop tripping every time I feel any kind of pain.
Once the stress level of being broke subsides, I know will
feel more confident. Because you know how you feel when you're
broke, pretty darn lousy, right? I will use this site now
for continued support.
I am so very grateful
for my life now. I will admit that I used to be a little over
confident, a little arrogant, but this experience has forever
humbled me. I am a soon to be a 51 year old African American
woman who intends to live life beating the odds and those
stats that I've decided don't apply to me. By the way, I don't
eat junk anymore. I'm loving that tonic called Noni, I am
eating those digestive enzymes, the omega 3, flax oil, multi-vitamin
with iron, guzzling carrot juice, and trying to do something
about this ugly belly fat. I am using the very dated Jane
Fonda work out tapes. Blessings to all who read this and much
success in staying positive and healthy!! BE WELL, LIVE LONG!!
Sheila
D., Berkeley, CA 2/10/08 |
In
January 2007, I began experiencing symptoms of jaundice with
dark urine, light stool, and terrible itching over my entire
body. A few months earlier I had joined Weight Watchers because
I had been battling obesity for years and was finally fed
up with being so uncomfortable. I had been diagnosed with
diabetes in 1999 and the weight did not allow me to manage
the disease very well. After I had lost about 30 pounds, I
noticed that my blood glucose levels were going up instead
of down; in fact, they were hovering in the high 400s to 500s.
Realizing something wasn't right, I went to my primary physician
for a comprehensive blood test.
A few days later,
I received a phone call from the doctor. He said my liver
enzymes were off the chart and he wanted me to have an abdominal
ultrasound and make an appointment with a liver specialist
to see what might be going on. Obviously this news was disturbing
and I asked if this could be life-threatening. He responded
that it was probably a treatable condition and that it was
not life-threatening. Was he ever wrong!
A week and a half
later I went to the liver specialist and after listening to
my description of the symptoms and reviewing my blood test
results, he said he wanted me to have an MRI immediately,
that day if possible, but no later than the next morning.
I went in the next day and was told it would be a few days
before the results would be available, but I got a call that
afternoon from my doctor. He had gone to the hospital shortly
after the test was completed and asked the radiologist to
read the scan as soon as possible. The news was disturbing,
but the reality of the situation had not registered with me
yet. Even though I was told there appeared to be a mass in
the pancreas and that I should be "very" concerned,
I had no knowledge of pancreatic disease, so I just trusted
that everything would be alright. In the same conversation,
this doctor told me that he had already made an appointment
for me at a major hospital in Chicago to have a test called
an ERCP. He saw the urgency in the situation and acted accordingly.
To this day I believe I owe this man my life.
The results of the
test revealed a 2 centimeter mass on the pancreas that appeared
to be contained. The next appointment was with the chief of
surgery who told me that surgery was the logical next step
and that he would perform a Whipple procedure. At no time
did he mention cancer, and I was confident that there was
none present.
I was in surgery
for about eleven hours, but from the onset, I was blessed
with one miracle after another. After being told I would likely
spend up to three days in the ICU and ten to fourteen days
in the hospital, I spent less than twelve hours in the ICU
and was home in just under seven days. It wasn't until I went
back to have the staples removed that I was given the news
that the diagnosis was cancer. Even at this point, however,
the doctor was confident that he had caught it in time and
that I would be fine. I knew only time would tell, but I am
grateful to this man for his expertise as well as his positive
attitude and perpetual encouragement.
The recovery from
the surgery, which took place in mid-March, was long and somewhat
tedious due to a few infections of the wound, but I am doing
well now.
The message I want
to send to everyone who is diagnosed with this terrible disease
is that it is treatable and extended high-quality life is
not only possible, but likely with the right attitude and
faith.
Paul
B., Wheaton, IL 2/7/08 |
It
all started in 1998 when I was told I had large tumor on my
left kidney. I had the tumor and adrenal gland removed that
year. Then in May 2002, I was told I had pancreatic cancer
and an option of two more months to live or to go through
a very complicated and "dicey" operation with a
maximum 50/50 chance to survive. The surgeon found out during
the procedure that my whole pancreas was filled with a tumor.
He removed my spleen, ENTIRE pancreas, gall bladder and bile
duct. They basically "lost" me on the operating
table due to heavy bleeding, but were able to bring me back.
It was tough recovering.
I had to go through chemo treatment for 6 months. I changed
careers, moved from overseas to the US and got on with life
thanks to family, friends and employer support.
In 2005, it was
that time again. Some pancreatic tumor cells had obviously
been left behind. I had a large tumor on my stomach that had
fused with my colon. I proceeded with 4 months of chemo and
radiation, which was extremely tough. Due to the chemotherapy,
I lost all the skin on my feet and hands. I then had half
of my stomach and part of my colon removed. After this, I
went through chemo treatment again. In 2007, cancer stuck
its ugly head up again showing enlarged and growing lymph
nodes in my abdomen. We are treating it and that seems to
be working with minimal side effects.
Soon it will be
6 years without a pancreas! The last 5 years I have been working
full time, traveling the world for my company. I am getting
tired, but it is worth every extra day to be able to enjoy
friends, and family. There is hope for everyone in the darkest
of hours. The medical profession has not seen it all just
yet!
Dennie
N., Cary, NC 1/23/08 |
I
am 51 years old. On August 16, 2007, I was diagnosed with
pancreatic cancer after having symptoms of painless jaundice
and itching. I was very lucky that, due to the size and location
of the tumor, I qualified for the Whipple surgery. I was sent
to a surgeon at a cancer center in St. Louis, MO. The surgeon
and his wonderful staff performed my Whipple surgery on September,
11 2007. I was up walking the next day and released from the
hospital on September 17, 2007. My recovery was amazing according
to my doctors. I only had pain from the incision, and that
subsided after the first week. I was taking walks and playing
with my granddaughters the next week. On October 24, I started
a 28 day treatment session of radiation with 6 days of chemotherapy
with the drug 5-FU. I had no side effects. I was then given
a month off and then resumed my second round of treatment
starting January 3, 2008. This round I am receiving straight
chemotherapy with a pill twice a day for two weeks of Xeloda
and a chemo drip once a week of Gemzar. Again, I have had
no side effects.
I will fight this
battle with every ounce of fight I have in me. I know that
without the love and support of my loving husband, my courageous
daughter and her husband, my brave son, my three beautiful
granddaughters, my father, my stepmother, my sister and brothers,
brother-in-laws, sister-in-law, nieces, nephews and a great
group of friends, my outlook may not have been so bright.
However, I feel better now than I have in years. I am hoping
after this round of treatment, I will be finished and will
just continue to get regular checkups and cat scans showing
no signs of the cancer. Though this is not a journey most
people would want to take, it has changed my life. I am thankful
everyday that I awake for having another day with my family
and friends and I am thankful again at night for the wonderful
day I have had. For to me, everyday is a gift. Make the most
of them.
Colleen
N., Bloomington, IL 1/10/08 |
At
age 49 I got the news that brought me to my knees. I had stage
IV pancreatic cancer and I had three months to live, four
months if I took the chemo treatments, but my quality of life
would be very poor due to the harshness of the treatments.
Naturally, I got mad as heck, why me? I don't drink, smoke
or even use caffeine. I had never been sick other than the
flu and I was in great shape physically. This can't be happening!
For those of you
that got this same message, I assume that you had the same
reaction: fear, disbelief, why me and ANGER. I think it is
normal to feel that way.
I went home to die
feeling very sorry for myself. After a couple of days I began
to think straight again and it came to me. I never quit anything
in my life, I am stubborn to a fault and I owe it to my wife
and two little boys to fight this thing that I have. I will
not go without a fight if only to show my kids that you can't
give up when the going gets tough.
I started a chemo
routine. Every other week on Thursday I had Gemzar and Fridays
I had oxaliplatin. I felt terrible for a couple of days but
I was back at work on Mondays and did not miss a day other
than my chemo days.
To make a long story
short, I had great results from the treatment. After 48 rounds
my tumor had been reduced from 12cm to 2cm, and has been stable
for 10 months.
I have a message
that I want to deliver to those of you getting ready to start
treatment.
1. It takes a lot
of energy to be mad, being mad that you have cancer is like
being mad at the weather, it does you no good. Take the energy
that you waste being mad and put it towards beating the enemy
(cancer). You will need every ounce of energy you have, don't
waste it.
2. Remember how
lucky you really are. If it was one of my children or my wife
that was stricken with cancer, I would be on my hands and
knees begging to please let it be me, not them. Well, it is
me, so my prayers have already been answered.
3. Don't give up...
Blair
J., Matthews, NC 12/17/07 |
My
husband, Ralph, after many tests which indicated no sign of
cancer of the pancreas, was finally diagnosed in October of
2006. He was given 6-9 months to live if the cancerous tumor
could not be shrunk. And we were given little encouragement.
However, after almost 6 weeks of chemotherapy and radiation
at a cancer center in our hometown of Shreveport, the tumor
was shrunk by about 70%. He was then a good candidate for
the Whipple. On February 5 of 2007, he underwent an 8 hour
surgery by a brilliant and highly dedicated pancreatic and
liver transplant surgeon. Ralph's recovery was difficult but
he fared better than most, especially considering his then
age of 67. I am happy to report that he is in great shape.
He lost a lot of weight but is now a trim 157 pounds and has
been getting on our roof these past few months to clean out
the gutters. His quality of life is better than it was a year
ago. He does not digest fats...they go right through him.
But, he has no pain and we think this is a miracle.
Charlene
B., Shreveport, LA 12/1/07
|
In
March of 2002, having been widowed only a year before, after
caring for my very ill husband for seven years, I began feeling
very ill. My first symptom was extreme itching on my torso.
I was sure that after seven years of caring for Pete, my house
was probably not as clean as it should be; therefore, I imagined
that there might be fleas in the house from my tiny Pomeranian.
Well, I got some powerful flea bombs and let them do their
work in the house while both the dog and I spent the night
in a motel. We came home hoping to have a restful night....not
so. I itched even more. Then, I decided that there must be
dust mites in my home. I hadn't had the carpets and upholstery
cleaned in a few years since I was so overwhelmed with other
matters. I ordered some very expensive dust mite cures online,
proceeded to apply them, spent another night in a motel, and
came home to the very same problem.
At this time I was
teaching part-time in the International American Language
Center in our local university. I began desperately spraying
my stomach area with cortisone spray....I couldn't make it
through an entire class without some relief, so I would dash
across the hall to the bathroom to spray about every fifteen
minutes. My students, I am sure, thought I was absolutely
crazy!!
Then, about two
months later, I had black urine and a white stool, a symptom
of jaundice. My physician, a dear friend who had cared for
Pete lovingly during his last years, said I was jaundiced
and that we would test until we found out why. I was one of
the lucky ones whose tumor blocked a bile duct; otherwise,
pancreatic cancer is usually a silent killer. Within forty-eight
hours after having a stent implanted in my gall bladder, my
liver enzymes had improved greatly. My physician made arrangements
to go to an institution where two physicians were conducting
a study of pancreatic cancer and trying very hard to improve
the possibility of life after the Whipple. In my estimation,
these two doctors are as close to God as a human being can
get. They are dedicated, very much involved, and highly skilled.
I know that I would not be alive today were it not for their
efforts. They and their staff members were available any time
24-7 after I returned to my son's home in Seattle. At the
slightest notion of a problem, I was placed back in the hospital
under their care immediately.
Something that truly
impressed me about the hospital's staff was that everyone,
from the custodian to the surgeons, was always on task. After
seven years of chasing ambulances and lifebirds during my
husband's illness, I was prepared for the worst. I was always
having to get downright obnoxious in order to get the proper
care for him. Not so, at this hospital. They were wonderful.
I recently had my
five-year checkup and am still cancer-free. An additional
reward during that week was that I became a grandmother for
the first time. What a week that was!!!!
Over the internet
and by telephone, I have mentored several people in the area
who have had pancreatic cancer. I must tell you that my survival
has been the most humbling of experiences. I take such pleasure
in a sunrise, a sunset, rise to greet the day with a smile,
and treasure the minutes, hours, and days of my life.
Patsy
R., Clarkston, WA 11/19/07 |
My
sister was diagnosed with pancreatitis in October of 2006
which in December was upgraded to an inoperable pancreatic
tumor. She did not share with us the "sentence"
her doctor gave her. All I do know is it was BAD! BUT, I refuse
to believe that there is "no hope" and neither does
she. She went to a hospital hoping they could help; they were
useless and like many other doctors told her to go home and
die. Well, we prayed with the faith of a mustard seed and
my sister found another institution which, by the way, the
doctor at the first hospital rolled his eyes and said he did
not put much stock in.
First off, NEVER
think you can have too much faith. We are wonderfully made.
We have incredible healing powers. My sister's cancer marker,
which was at 4,000, has steadily dropped and is now at 50
with no signs of any spreading. It is a year now and she is
looking great. This is not to say it has not been rough and
incredibly emotional. At her institution, they treated her
holistically, mind, body and spirit. She had three types of
chemo. The support there is incredible!
Do not allow the
doctors to make you believe you have no options, because you
do. My sister totally changed her lifestyle and eating habits.
She eats raw foods and juices, cutting out sugars and refined
foods, and no smoking or drinking. These things have to lose
their importance to you. And it is so important to believe,
believe you can and you will be healed. False hope is an oxymoron,
there is no such thing. You have hope or you do not. Please,
have hope!
Valerie
N., Fair Play, CA 11/4/07 |
I
am glad to tell you that I am a 16 year cancer survivor. I
was diagnosed with periampullary adenocarcinoma when I was
41. I had a 6 hour Whipple procedure in May 1991 in a hospital
in Kalamazoo, MI. My symptoms were itchy skin, yellow-colored
eyes and fever. The operative findings were a large 3 centimeter
mushroom-shaped mass in the Ampulla of Vater. There was no
evidence of any known metastases. I stayed in the hospital
for 11 days and was discharged under the care of my sister
who is an R.N. with critical care experience. By the way,
I had no chemotherapy or radiation. I am a type II diabetic
and had my gall bladder removed.
I am now 58 years
old. I'd like to share my story to other survivors. Faith
and family support are very important.
My advice is get
medical attention once you experience pain in your body. I
am alive, enjoying life with my family in the Philippines,
and I am sharing my story.
Lydia
Y., Las Pinas City, Philippines 11/1/07 |
Reading
the stories of courage and determination has given me and
my family hope during our whirlwind with this disease. I am
writing about my Father who had no symptoms but had had a
fever and a fainting spell while visiting the doctor. They
attributed the fainting spell to his fever. He was admitted
to the hospital because there was a protein test that was
performed that seemed, as the doctor said, "peculiar".
Amazingly enough, the doctors didn't give up on trying to
figure out what was going on. Over a period of 5 days in the
hospital my dad was visited by over 30 different physicians
from Infectious Disease to Oncologists. It was while performing
a CT scan of his lungs to check for a blood clot (which runs
in his family) they saw a mass on his pancreas.
Cancer wasn't what
we were thinking was going on. He had a follow up scan, and
then an endoscopy biopsy which confirmed his diagnosis. He
had a distal pancreatectomy removing the body and tail of
his pancreas, all lymph nodes around the pancreas, and the
spleen. He does have metastases to the liver. He is one of
the lucky ones, for getting to have surgery and healing pretty
quickly. He did have one set back just a few weeks ago, where
he developed a "leak" where pancreatic fluid had
built up and he had to have that drained and was hospitalized
for a few days. He has lost almost 60 pounds and continues
to lose a pound here and there. He is eating well but doesn't
seem to be maintaining his weight very well. We continue to
remain very optimistic.
It is amazing how
something so devastating can bring so much good to a family.
We are closer now than we have been in years. My dad's famous
words, since hearing of his diagnosis and talking with people
on the cancer floor at the hospital, have been "It could
always be worse". I am so thankful that we still have
him and that he continues to face each day with such an amazing
attitude.
I admire each and
every patient, caregiver, daughter, son, and friend that is
living with this disease. Keep on fighting, keep on raising
your voice, and most importantly, Keep On Living!!
Shelley
G., Des Moines, IA 10/29/07
|
I
was inspired to tell my story after reading a story from another
advanced stage patient. She was dismayed that so few survivor
stories were written by stage IV patients. Like her, I also
looked for similar stories when I was first diagnosed 17 months
ago. In the spring of 2006, at age 50, I was sent by my primary
care physician for a CT scan after complaining of abdominal
pain which he suspected was due to a kidney stone. Within
days I began experiencing very typical obstructive jaundice
systems -- dark urine, severe itching and yellowing of the
eyes. Everything happened very quickly. I had a CT scan within
a day or two of speaking with my doctor. I went in for the
scan in the late afternoon and my doctor had the results the
next morning. He called and had me schedule an MRI and come
in for blood work. Again, results were back the next day.
Within one week, I went from a very healthy, active woman
to having a confirmation of stage IV pancreatic cancer through
a liver biopsy. I was admitted to the hospital due to the
jaundice and to have an ERCP to place a stent in my biliary
duct and to do the liver biopsy. I am fortunate to be in Chicago
with access to a world-class medical center.
After almost one
and a half years of Gemzar (gemcitabine) chemotherapy, I am
feeling very good and my tumors in both my pancreas and liver
have shrunk. I remain quite active and often travel to visit
family and friends. I feel that each day is a blessing. My
husband, family, friends and medical team have all been a
source of tremendous support.
Nancy
T., Chicago, IL 9/19/07 |
Devastating.
One word to describe
the overwhelming realization that PanCAN's Survivor and Caregiver
Network did not contain any volunteers who had metastases
in all the same locations as I. I spent hours reading
and rereading the inspirational stories for someone with a
similar story. I checked daily, hoping to find that one person.
I was, however, thrilled to talk to two incredible stage IV
survivors in the Survivor and Caregiver Network and maintained
the hope that I would one day be able to serve a resource
for others.
Partial Remission.
Two words to describe
my current status after eight months of treatment. The tumors,
once ‘too numerous to count,' are retreating. My liver and
lymph nodes, clean. The tumors on my lungs and pancreas, shrinking.
I allow myself to take comfort in this victory, knowing and
understanding how fortunate I am to be alive.
Owning my Life.
Three words that
describe me. I quickly realized it's not about ‘finding a
balance' between my life and the tumors. It's about throwing
everything I love, everything wonderful in life, at cancer.
Recognizing my fear and anger, and still finding the strength
within to seek out my dreams. Squeezing as much life as possible
in between blood work, appointments, treatment, and scans.
Trying to live, laugh and love more than lament.
I am strong. I am
fighting. I am surviving.
Nine words that have
kept me alive.
My story isn't about
pancreatic cancer. It's about living.
Kate
T., Boyds, MD 8/31/07 |
Three
weeks ago, I walked in a storm to the lumber store to get
wood for an as-yet-not-built kitchen drawer divider. In the
downpour, I passed an open suitcase filled with three inches
of water and floating picture frames. I rescued two of those
frames, which I washed and dried out. They are as good as
new, both blue, one leather, the other wood. Two days later,
a photograph arrived in the mail, which I put into the wood
frame. It is a photo of a hotel staircase packed with thirty
waving people. If you peruse it, you will see me towards the
back. It is a gift from PanCAN, taken at this year's Pancreatic
Cancer Symposium – New York. We are all survivors, of mixed
ages, genders, races, and ethnicities. What we have in common
is that we are all smiling.
It is, indeed, a
good day.
Mary
Rose D., Brooklyn , NY 8/14/07 |
I
appreciate very much these examples of faith, hope and determination.
I am a seven year
pancreatic survivor and want to add my own story of survivorship
to these inspiring stories.
In a nutshell, I
believe in using both Western Medicine and carefully selected
Complementary and Alternative Medicine methods. I think tough
diagnosis calls for openness to “out of the box thinking”.
And I certainly believe that fighting makes a big difference
in one's health. I also explore what makes a good oncologist
and discuss why I needed to change oncologists very early
in my treatment.
To Life!
Jerry
A., Coralville , IA 7/22/07 |
I
was diagnosed with Non-Functioning Islet Cell Carcinoma, a
neuroendocrine tumor, in August of 2000. I underwent a Whipple
operation but declined chemo or radiation. For 6 years I was
tumor free, but I knew that this type of cancer was slow growing
and I could expect it to show up again. In October of 2006,
I was found to have multiple metastases in my liver, spine,
right hip and abdomen. I went to a cancer center and saw a
physician who is a neuroendocrine specialist. He recommended
a brutal chemo regimen that might help a little, but would
probably make me very sick. I came home and started very intense
research on the internet which led me to PanCAN and from there
I found another physician.
I went to see him
and he immediately told me that he felt I was a good candidate
for internal irradiation of neuroendocrine tumors with Yttrium-90-DOTATOC,
a radiolabeled somatostatin analogue. Unfortunately, this
treatment is only being done in Europe at this time. Here
in the states, they are in the final clinical trials for final
FDA approval. We chose to go to a University hospital in Switzerland
not knowing if insurance would pay or not. Some do, some don't,
but a lot more are with appeals. I underwent two treatments
8 weeks apart and now I am completely tumor free. I was amazed
at how fast the tumors disappeared; I had no side effects,
and feel great!! I read so many sad stories of people suffering
from these types of tumors and they have never been offered
this treatment. I just want to share that it is available
and I understand it is not for everyone, but it saved my life.
If I can help one other patient, then it is worth letting
more people know about it.
Marcella
O., Pensacola , FL 6/27/07 |
My
husband and I were so happy because we had our first baby
in October. In November our families were with us because
they met the baby. They came from our country. We are not
American and we are living alone in the United States. Those
days, my husband didn't feel ok, his skin was turning yellow
and his urine was dark. We went to the ER, he got a CT scan
and they found a mass in his pancreas. It was terrible; he
is 32 years old and we had a three week old baby.
His surgery was
on December 6, they took the tumor. The margins were clear
but of 23 lymph nodes, 5 were positive. My husband had two
cycles of chemo with Gemzar and 5-FU. And he finished his
chemoradiation 3 weeks ago. The first CT scan was fine and
the next is on June 18th. We hope that it will be ok.
I want to share
my husband's story because I want to help people who have
the same illness. It is so hard to face cancer, but don't
believe in numbers, all people are different.
We are young people
and our baby is 8 months old now. This disease does not care
about age, but we must keep strong and fight against cancer.
I am strong to support
my husband and take care of my baby. I had never believed
that I could be so strong, but I have received many things
from this terrible situation in my life. We can never lose
the HOPE.
Mora
L., Philadelphia , PA 6/5/07
|
I
was diagnosed with pancreatic cancer in November 2005 after
having bouts of diarrhea and stomach cramping that had come
and gone for about 6 weeks. It was a Thursday when I went
to the doctor the first time. He gave me some prescription
antacids; I called on Tuesday saying they didn't work. I had
an ultrasound on Wednesday evening and was told, on Friday,
that my pancreas and spleen were enlarged and I had to have
a CAT scan and blood work done. I had that done on Monday
and Wednesday evening I was in his office and he gave me the
diagnosis of pancreatic cancer.
I went to a cancer
center and contacted a local oncologist. I had the biopsy
done the day before Thanksgiving. My mom flew in and helped
for the next couple of weeks. I was told that the cancer was
inoperable due to involvement with the superior mesenteric
artery and to try chemo and radiation. So I started Xeloda
and cisplatin. When that ended I was put on Tarceva and returned
to the cancer center. I was told that it was still inoperable
and after prodding about what that meant the doctor said "You
have a month to a year." That was a year ago March. My Dad,
who lives locally, had gone to the cancer center with me and
we both cried. When we stopped I called my oncologist. She
is the most wonderful caring woman and also very knowledgeable.
We went to her office and she said she had just seen something
from a surgeon at another institution looking for pancreatic
cancer patients with unresectable tumors.
So off I went to
that institution. There I was told again the artery entanglement
precluded me from surgery. My oncologist and my new surgeon
talked and decided that we would start on Gemzar and Tarceva.
At the end of May I went for more tests. I was bloated and
the thought was that it had spread. They performed a laparoscopy
to see what was going on and came back and said they could
now do surgery.
On June 15, 2006
I had surgery. It was a new surgery, not the traditional Whipple.
I was on the table for 11.5 hours. I lost my spleen, a vein
from my neck was relocated to replace a piece of a vein that
was involved, and the tail of my pancreas was removed. I was
at the hospital for another 3 and a half weeks recovering.
They did finally
let me out when I said I was going to walk a mile up the road
with my IV pole to my friend's wedding. I did manage to dance
to several of my favorite songs at her wedding, the day after
being released from the hospital. Of course she had hired
our favorite local band to play, so what could I do?
I was in and out
of the hospital over the next month and a half. My port got
infected (another week stay). I reacted to the antibiotics
(another week). Once I was better from all the reactions,
I felt good. I was back to work the last week of August.
My CAT and PET scans
came back clear in October/ November. Then, in January 2007,
two spots were found on my liver. According to my oncologist,
a local community radiologist would have never found them.
Thank goodness for my cancer center.
I am now in my second
round of immunotherapy treatments as part of a phase II clinical
trial. The spots have not grown since I started the trial,
so that is good. I continue to have treatments once every
three weeks and have two more to go. Then they will have to
determine what to do next if the spots aren't gone (that's
the hope with this trial). The nice thing about the immunotherapy
is that it does not affect me at all, I feel normal and healthy.
Pam
W., Germantown , MD 5/28/07 |
My
journey began on April 24, 2006. I had been having an intermittent,
annoying pain on my left side that I thought resulted from
exercising (pulled muscle) and also some Popeye's fried chicken
(which I don't normally eat). The combination of the two caused
quite a bit of pain one evening. I called my doctor and he
suggested I go to the emergency room. After extensive testing,
I was told that I had a "suspicious lesion" on my
pancreas and I should see a surgeon after release from the
hospital.
Being
very naive about what a "suspicious lesion on the pancreas"
really meant, I went home and spent the day on the internet.
Overwhelmed by my findings, but determined not to let it "get
me", I immediately interviewed several surgeons. I had
the Whipple surgery on May 6, 2006 and was released 6 days
later from the hospital on May 12th, just in time for Mother's
Day. The 2.5 cm tumor was removed, there were no metastases,
and my lymph nodes were all clear (stage I pancreatic cancer).
After
surgery, chemo and radiation, I returned to work after approximately
4 months. I had a very stressful job as a director of human
resources, and my husband felt it best for my complete and
continued recovery that I resign in April 2007. Shortly after
returning home from a lovely vacation to the Dominican Republic
, on February 28, 2007, I was taken to the emergency room.
I had emergency surgery the next morning to remove part of
the small intestine that had become ischemic due to scar tissue
and/or radiation from the first surgery. That was my last
day on the job where I'd worked for 27years. I now have SBS
(short bowel syndrome) and am home healing, adjusting to my,
prayerfully, temporary need for TPN (nutritional supplement),
and staying tuned for what is planned for me on the next leg
of this wonderful journey called life. I remain cancer free.
Two
major surgeries in less than 1 year! There is so much good
news that I could share with you that has occurred on this
journey that I truly don't stop (very often) to think about
the not so good news. Sitting here telling my story is such
a blessing and a gift. I've also had the blessing of two beautiful
grandchildren born in the past year (both 2 months premature
but doing well). One was born a few days before my first surgery
and the other one a few days after my second surgery. In addition
to my faith, I give special thanks to my incredible husband
(married 9/04), my ever praying mother and step-father, my
faithful children, my church family, my incredible co-workers,
and a host of other friends and family. I had people all over
the world praying for me and for that I give THANKS! A very
special thanks to a friend who I met recently through a coworker
who knew that we were both on the same journey. Her spirit
is incredible and it has helped to keep me going. We've never
met in person but we plan to have lunch real soon.
There
are so many incredible stories of faith within my story about
my pancreatic cancer journey that I'd need to write a book
to fully capture all of the blessings of the past 12 months
of my life. Please, if you're on this journey, stay positive
and stay faithful!
Debbi
V., Silver Spring , MD 5/3/07 |
My
name is Bill. I am 25 years old and I have pancreatic cancer.
Not only do I have it, I have a rare kind of tumor, IPMN.
The chance of me getting this based on my age and background
is .001%.
This
all started when I was having some really bad heartburn and
my stomach would feel like a washing machine. I went to the
clinic to have an ultrasound done. The test came back showing
a mass on my pancreas no bigger than a dime. A blood test
also showed raised liver numbers that would rival someone
with Hepatitis C or Liver Disease. Over the course of the
first 6 months of 2006, I would have 3 biopsies and too many
blood tests to remember. Each biopsy would come back showing
it as non-cancerous, which later on would not be the case.
During this period of time, I would become a diabetic and
lose over 40 pounds to go from 170 to around 135-130. I was
a walking zombie and knew there was something the doctors
weren't finding.
In
July of 2006, I was able to speak with a case worker at a
cancer center about my situation. After this, this cancer
center became one of the reasons I'm still here today. I first
saw a gastroenterologist who had an EUS biopsy done which
showed a blockage in my bile duct, but again the test showed
up negative for cancer. My doctors weren't convinced about
this because my CA 19-9 was abnormal. I was then referred
to the head of the GI unit and head of pancreatic oncology.
I will forever say that this man saved my life. He told me
that I would need to have a Whipple operation done and that
I would go through a round of tests a week before the surgery.
One test they give you is a PET scan which shows cancer in
your body. Well, in my scan, it showed that there indeed was
something showing up as cancer and he wouldn't know the damage
until the surgery.
August
23rd, 2006 at 6:30am, I was brought into the operating room
for what, on average, is a 6-8 hour operation. When I was
opened up they found that the tumor was directly on top of
a major blood vessel that if cut would cause me to die from
blood loss. The surgeon would later tell my parents it was
like "cutting hard concrete off wet tissue paper".
My operation would last 13 1/2 hours. After I woke up from
the surgery, I didn't sleep for the next 2 days straight.
I felt helpless and alone. I was depressed because I felt
that the life I had before would never be the same.
My
hospital stay was longer than most after the surgery. Most
stays are 7-10 days. I was there for 2 1/2 weeks. I was able
to move around and walk around the hospital when I was up
to it. Friends and family would visit me all the time and
that made things a lot easier to deal with. When I read about
this cancer online and learned everything I could about it,
I found statistics. I keep those numbers in the back of my
head to know that they only numbers, not a death sentence.
My
stomach didn't wake up from the surgery until 2 weeks later.
That would be my first real meal in 2 weeks. I will remember
it forever, roast beef with mashed potatoes and mixed veggies.
Oh, and I almost forgot, chocolate cake. I can say that was
some of the best food I ever had. I didn't finish it all,
not even half, but just the fact that I was able to eat solid
food again made me feel like I was normal again.
I
left the hospital on September 9th in a wheelchair with a
drainage tube and a feeding tube weighing 125 pounds. My staples
were gone, hospital stay done. Ahead of me would be the biggest
challenge I would ever face in my life, chemo and radiation.
A lead oncologist specializing in pancreatic cancer treatment
put me on what they called "an aggressive treatment plan".
This would include 3 stages of treatment. The first would
be 3 treatments of Gemzar and a week off. The second stage
would be 28 radiation treatments along with wearing a pump
with 5-FU for 5 days a week for 5 1/2 weeks. The third stage
was 9 treatments of Gemzar with the treatment broken up into
3 weeks on and 1 week off.
The
first 3 treatments weren't that bad. I had nausea but not
the vomiting I expected. I did not lose any weight during
this time. I had a week off but then started my radiation
treatment with chemo. This period of time was the worst for
me. Between the treatments and sleeping while Ensure was being
pumped into me, the nausea and vomiting was terrible and violent.
The one thing that helped me through this period and my entire
treatment period was smoking medical marijuana. My doctors
agreed that this and the vitamins I was taking were helping
with my nausea as well as with putting weight on.
I
was given a 13 day break after the second stage which I took
full advantage of, going out and hanging out with my friends
for the first time in months. The third stage of treatment
was very hard because the nausea and vomiting increased, but
yet I was still able to keep on the weight because of the
vitamins and medical marijuana.
My
last treatment was on Feb. 23rd and since then I've had 3
blood tests and PET/CT scans. All were normal, my scans were
clear and my cancer makers are in the single digits. I am
also 160 pounds and, other than the scars from the surgery,
you wouldn't know that I ever had cancer. I am thankful everyday
that I am alive because a year ago at this time, I thought
I'd be gone and not able to tell you my story. Not a day goes
by that I don't think about everything I went through, but
it has matured me and turned me into a better person. I know
now that when you have a wall in front of you, you go through
it and get to the other side. With cancer, any cancer, there
is only one way to get to the other side of the wall and that's
to hit it with everything you have to break that wall down.
I
hope that my story helps someone get through having cancer
or someone helping someone who has cancer to let them know
that you can beat this. I am living proof of it.
Bill
H., Palm Harbor , FL 4/30/07 |
I
was diagnosed in September 2007 with pancreatic cancer, a
combination of adenocarcinoma and squamous carcinoma. It started
as a sharp pain in my solar plexus. I thought it was acid
reflux. With the persistence of my wife, I went to my doctor
after having dark urine and clay colored stools. After two
weekends in the hospital they finally performed a biopsy with
brushings. The results came back highly suspicious of adenocarcinoma.
My heart stopped. I had an idea of that the first night in
the ER when the attending came in and told me there was a
mass on my pancreas. They didn't want to call it cancer. They
all said I was too young and it was most likely gallstones.
Whatever. I knew.
My
wife was two months pregnant, I had just bought a house, and
had just gotten my pool table. All my dreams had come true.
| |